Trapped In The Body Of An Old Man: He Is Only 14 Years, 12 Pounds And Has An Incredible Will To Live
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Nihal BITL (14) from India suffers from a rare disease syndrome Hutchinson-Gilford, which causes getting older eight times faster than the others. This disease creates the way od life of a teenager trapped in the body of an old man, but Nihal has the strength and the will to enjoy the little things.
Those who know Nihal say that he is very caring toward others and that it adorns the children’s naivety. He loves video games, painting.
Unfortunately, the disease is not about to stop. The skin of this boy is rough and wrinkled, he lost his hair, and his mobility weakens over time.
Nihal is now only 12 and a half pounds, while its height is meter and 20 centimeters. He stopped going to school. Schoolmates have teased him. They called him Auro, after the eponymous hero of the movie “Paa”, who suffers from this syndrome.
A friend told Nihal that he would suffer a heart attack like Auro, and after that sentence he didn’t want to go back to school no longer...
The syndrome Hutchinson-Gilford progeria brings with it a high risk of heart disease. The average life expectancy of people with the disease is 14 years, a small number of patients experienced 20 years.
Nihal, who is from Mumbai, since December last year staying in a research center in Boston, where doctors are trying to slow the development of disease.
This boy from India was born as a healthy baby. At least so it seemed until the 18th month when his parents noticed strange symptoms. Doctors took five years to establish the diagnosis.
It is the pediatrician who succeeded, Dr. Parag Tamhankar, eight years later sent NIhal to Boston.
Currently against the syndrome of Hutchinson-Gilford progeria is no cure. Doctors can only fight to prevent Nihal has a heart attack, which is the most common cause of death in patients with this disease. In recent weeks, his therapy was discontinued because of Nihal an infection of the liver.
This boy has two great desires, one is to introduce ASIMO robot, the other to visit Disneyland in California.
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